About

The Canadian Registry Network consists of 9 registries which seek to share science and connect researchers everywhere. By working together on projects, the Canadian Registry Network specifically aims to improve the design, quality and impact of registries.  The first project on which the Canadian Registry Network collaborated is the Neurological Registries Best Practice Guidelines and Implementation Toolkit Project. The guidelines and toolkit are designed for researchers planning new registries. They were developed through 17 months of work including a literature review, patient focus groups, and consultation with clinicians in each of 14 priority neurological conditions.